Lazy

Today i feel lazy i guess because its close to the end of the year. This week was a good week though I went to the ent and went to the hosptital fo rmy tube.

IT is a week closer to Christmas

Qgere is this year going? This week was a good week last weekend i went to the shops wit Mum and Dad both days. Monday i was at balmain then cpp. Tuesday we had bbq with the Parramatta gorup. It was good to see everyone again. Wed was a normal day at AFFORD. Yesterday i went swimming and did normal stuff. Today I am at cpp then the shops.  This weekend me and Kristy have christmas parties. One is with respite and one is with our swimm9ng place

IT is a week closer to Christmas

It is Decmeber allready and I have been at respite this week. Monday I went to respite after cpp. It was good. Last weekend I went to Leura and I went shopping with mum. I mannaged to walk down katoomba street f. I bought a new dress and top from my auntys shop. Monday night i had a taste of some custard at respite it was good. Tuesday I went out with cpp to st George Leagues club. Yesterday I stayed at respite all day and coloured in Christmas decorations. Today I am not going swimming as I dont have money and I dont have my swimmers. I dont have monney because respite locked it away. Tomorrow i am going to the AFFORD Christmas party at Blacktown after that I will go home. On the weekendIi may go for a swim and we are going for dinner on sunday. Next week it will be back to normal

Been hiding

IT is Nearly Christmas the year.  Last week i had a cough and the i was at my lovely carers house. On the weekend I went to an art exibition with Ruthy my old carer and sunday we went for a walk. Monday i went to balmain the went to cpp. Tuesday i saw harry potter and i loved it. Wednesday was a normal day and yesterday i went swimming.  Today i will do soem shopping over the road then i am seeing my endocronologist. then tomorrow im going to lerua.

respite this weekend

It has finaly gotten more like summer. I can go swimming now if i want and i did on sunday.  Saturday me and mum and dad went to the shops and brought food. Sunday had a lovely swim the went to Lararouse with mum and dad and my cousins was beautiful. Monday was a normal day. Tuesday we went to the movies with cpp but couldnt see antything beacause they finnished to late so i looked in the shops. Wednesday was afford. Yesterday i went swimming again and did normal stuf today im off to respite till monday then again in two weeks. I like respite

It is Novembeer

Wow It is November and it feels like winter again.  Last weekend i was at restpite wa good. I also went to my old school reunion. It was good to see everyone again. Monday was a normal day at balmain and then i went to the library. Tuesday i went to the chocolate shop with CPP I had chocolate dipwith strawberries it was yummy but my reflux played up  Wednes day was a normal good day at Afford. Yesterday i went swimmiong and ate tofu shoup yummmmmmm. Today i will go over the road and maybe start my christmas shopping. This weekend i am going swimming and will probably help mu clean out the books she brought back form drummoyne the house there is finally settled and is no longer ours.  I will not miss drummoyne to many bad things happened to me.. Coogee changed eveyrthing for meand im much happier and helahtier. I want it to get warmer so i can have a swim in the ocean at coogee again. 

It is November

October is nearly finished

Wow October has flown by so fast. I have been doing lots of stuff. I went to  the CHARGE Conference in Fremantle with Mum. It was good. I am now looking into getting a Baha implant, so yesterday I went to the hearing centre. I have also been in Leura and doing other usual things. This weekend i'll be at respite and next week its November.

It is spring allready

K havent updated in a while because last Friday i was in the hospital having an endoscopy. They found my reflux is worse because of some neurological problem i allways have had. I also have a hiatus hernia inflamed oesopegus and an ulcer in my tummy. Last weekend I went to the antuique fair with mum and dad on saturday and sunday went to grandmas. Monday was a normal day at Balmain then i did cpp. Tuesday i came form respite and went to Maroubra beach with cpp it was crazy it was rainy and windy and we were in the Pavillion i also got us a little lsot. Wednesday i was at respite just talked and hung out. Then yesterday was cpp then home. Today I am going to the shops and on the weekend i dont know what im up to yet.

ITS SPRINGGGGGGGGGGGGGGG

Well spring has sprung Last weekend i was in Leura it was lovely and warm in the day but cold at night. We saw Mark and Lynne and Simon and Vettes new house. Monday i went to Balmain as usual then i was at cpp. Tuesday we went to chocolate shop it was yummy. Wednesday was a normal day thursday i was here went on the computer and went swimming. Today i am off to the shops then off to grandmas for Marnies birthday. on the weekend dont know what i am doing yet but hoping to go see a firend.

its nearly spring

Wow it's almost spring Last weekenerd me and mum went to the organic expo Saturday. it was interesting. Sunday i caught up with an oold firend. That was fun. Monday was my usual day at Balmain then cpp. Tuesday we went bowling loved it. Wednesday was a normal day at Afford. Yesterday i did swimming and other stuff at cpp. Today I am going to the shops as usual and on the weekend im going to Leura

a flying year

Last weeken me and mum and dad went for a drive on saturday in the traffic. Sunday i went to the beach. Monday was another normal day

The Years Racing by

I cant beleive it is nearly christmas the year is flying. We are allready in August. Last weekend I went for a walk up and down Bondi beach in my walker it was great. Sunday i went swimming then we went to dinner at grandas house.  Monday i was at balmain then I came to cpp. Tuesday i went to Ashfield leagues with cpp was good. Wed was a normal day at afford. Yesterday i went siwmming and did other prgrammes. Today going to the shops and this weekendf not sure what i will do yetl.

ahhhhhhhhhhhh yet another week

Another week is nearly over YAY. Last weekend I was in respite it was good but i dont like wking up at seven on weekends. Monday I was at Balmain and then I went to the library and did some stuff at cpp. Wed was normal at afford and yesterday I went swimming and ate to much custard that we made. It was yummy but it made me reflux bad. Today it is nromal over the road. On the weekend i will probably be on fb as usual and see family as usual

Another week

Its cold today. The last few weeks i was out with cpp for two weeks beause of the holidays. Respite use the house in the holidays. We went shopping movies, bowling, club and the parks. I was also sick with vomiting and stupid chest thing. Last weekend i saw my wonderful uncle and the family. On saturday we went to fox studios and on sunday we went to the park near Coogee and had a barbeque I lay in the sun and got over heated. Monday was back to normal i came here to cpp and checked m fb and did soem programmes. Tuesday we went to chocolate shop i ate a cheese cake and refluxed it up. Wednesday was a nromal day at afford and yesterday I went swimming and did normal programmes. Today i am going to centro as sual then I am going to respite till monday

coolweek

I had a great birthday weekend. Sunday we had afternoon tea i got books, games for my ds, clothes, stuff for my body and some funny stuff like a bsath plug LOL. Monday i went to Balmain then i came to Roselands and jsut went on the computer. Tuesday we went to ST George leauges and listend to the music that was good fun. I danced around eveyrwhere. Wed i was at afford and yesterday i was at CPP and i went to the Ent. The ent was happy with me he said my ears are all good and clear. At cpp i did a fire drill with everyone my chair went funny down the hill and i went on the computer. Today i am going to the shops and i am going to spend my book voucher grandma gave me. This after noon i am going to Alex house for the weekend then mum and dad will coem for lunch on sunday. Alex is our family firned nd i love her lots. I cant beleive half the year has gone allready

NEARLY MY BDAY

Well Monday will be my birthday i will be 25. I have been through alot over my life but thanks to good family and firends I have made it another year. This week was another good week Last weekend we went to the winter magic in Katoomba it was cold but nice. I got to see my auntys shop it was good no dammage at all. Monday was another normal day. Tuesday i went to st George lewagues club and we listend to the music. I was dancing around everywhere. Wednesday was another day at AFFORD and yesterday was a normal day here at cpp. Ii went on the computer and did some cooking. We made gravy with kangaroo meat yummmmmm. Then I went to respite and talkied and stuff. This morning Me and kristygot up early and came to cpp. Respite was funny this morning I was on the comode getting to my chair and the seat part fell off and took me to the FLOOR. I was sitll on thre seat and didnt hurt my self. Tomorrow i will be at respite we are going out and iIwill probly do someother stuff then sunday will be my party. We are having an fternoon tea with family and firneds

another week

Another week has flown by. Lasrt weekend was a long weekend and i was in the mountains with mum and dad. We went to the shops and we sat in front of the taosty warm fire. Tuesday we jsut sayed at cpp all day as there were not man ystaff so i couldnt go out. Qednesday wa another good day at affrd did lots of work as usual. Yesterday i went to the dr and found i have another ear infection second in a month then i came to cpp and wet on the computer and did ILS and relaxation. As we were doing ils fire awareness i didnt know there was a real fire next to my auntys shop in Katoomba . The shop next door burnt to the ground and she got flooed and i fouund out last night on fb how funny that i did the fire awareness> Today im going over the road as usual and tomorow i am hoping to go to the winter magic and to see the shop. In jsut over a week it is my birthday i will be 25. I am hoping to get some games for my Ds clothes and books and bath stuff.

Another cold week.

I am so happy this week, it has been sunny even if it has been cold. The rain was starting to get to me. This week I also had a good week. Monday I came to CPP and went to Balmain, Tuesday I went to Bankstown shops and bought two new pairs of pants. Pants are so hard to get because i am so short and the legs are often to long but i went into one shop and found two pairs. Wednesday i went to AFFORD. On Thursday, I had a good swim and did some other good stuff at CPP. I even walked in the garden and watered it. Today I am going over the road as usual and on the weekend i am going to go to Leura for the long weekend with mum and dad and see my family. Last weekend I went to Sev's house and we went to the Northcott trivia night, which was good fun. I am hoping to get my new chair soon though this one is getting old and annoying.

i am back form respite. It was great fun. Qe watched tv did arts and crafts and listened to the rain.

i am back form respite. It was great fun. Qe watched tv did arts and crafts and listened to the rain.

another week

I had a good week this week. Saturday all of Yevettes family were down so we invited evyerone for dinner. it was great to see my cous and eveyrone like usual. Sunday me and mum went to her wonderful firneds house and walked along the river lovely. Monday wa my usual day at balain then back to cpp. Tuesday was another good day we went to the art gallery it was good fun. I kept making Kristy laugh co my hearing aid battery was dead all day. Wednesday was my usual day at afford and yesterday was cpp. I went swimming and decided to start editing my CHARGE speach. I am looking forward to going to the confrence by my self. Today i did some more editing and will go to the shops soon and tomorrow we r all havng yum cha for grandpas birthday a good way to remember him Sunday not sure yet jsut relasxing and stuff

Wish wish wish

I wish people would accept me for who I am, sometimes not for what Im not. I wish I didn't make so many firends in hospital. It was a bad place there but all bad places need some smiles thats why I made so many friends.  Some people obviously dont want to be my friend so why do they add me on Facebook? One of my friends from hospital doesn't want to see me anymore. I've made two attempts on Facebook, she replies to other friends and not me.I'm not a good friend obviously.I ought to just not have friends sometimes because I'm too friendly and I think people don't like it.  I am hoping to go swimming soon at CPP. I love my swimming, it is such good relaxation. I also have my tube change tomorow. Hope it helps my reflux I like to have it changed with sedation it feels so much better. On the weekend I would like to go to the mountains but we probly wont we will probably jsut stay home and see grandma and other people.

My week

I had a good week this week. Saturday me and sev went to Maia's for afternoon tea, Sunday we walked in the first ever northcott WALK WITH ME. northcott raised 4000 dollars all up for respite there were many walkers and many people spnsored us. Monday i went to Balmain and tghen came to cpp, Tuesday we went to Malabar beach. Wedensday i had afford and yesterday i jsut had cpp went swimming. Today i go over the road and i will buy some stuff.l This weekend i have my tummy ndr tomorrwo and after that probably not much sunday off to see grandma and everyone for afternoon tea.

Oh im a idiot

This heat thing is really getting to me lately. I think i have found out what i have one of the other chargers have similar problems but when i told samih the date for my doctror he said thats like one and a half months dont know that i can wait that long.  I have blown off two times today for no reason this is starting to get annoying. I think the staff might start hating me if this keeps up. I am happy my ear infections gone had a good swim yesterday. On ANXAC day sunday i will miss grandpa he was a good fighter even when he wasnt in the war.  My mind is going everywhere but hwere it sho8uld atm hmmmmmmmmm oh well at least this is a programme. I WISH RUbYS FOOD DINT MAKE ME HUNGRY ON HER BLOG GRRRRRRRRRRRRR coem back and coolk for me.

This heat is thing is really getting to me lately.  I think i have found out what it is that i have because one of the chargers has similar problems.  My dr isnrt for another month and a half though. I cant wait that long i have blown off two times this morningfor no reason, this is starting to get annoying. I think the staff might start hating me if i keep this up.  I am happy my ear infection has gone. On ANZAC day sunday i will miss grandpa0. and probably spend soem time in grandmas pool. I am off to respite monday till thurs.  Oh how i wish i could eat REubys food when i see it on her blog come back and cook it for me. My mind is eveyrwhere but at least thi is my programme                                                         

My Week

I had a good week, Monday i went to Balmain as usual and then to cpp as usual. Tuesday i went to homebush park and went on the Liberty swing. Wednesday I was at Afford and then went to Breatriz's house because yesterday there was no cpp. Yestgerday i was on msn and the computer all day and today I am at cpp.
I am afraid of losing firends because Beth told me I said something about Kristy's party and they rang her to ask her and now i think that my big mouth is too big for its own good. I didnt say anything, just that i didnt know where it was going to be because a place hadn't been selected yet . I hate it when people take things the wrong way, I wish i didnt have a big mouth.

My weekend away

On Friday the 5th of march I went with mum to Brunswick heads for johns fiftieth party and Ivys naming ceromony.  We flew to the Gold Coast and had a long delay at the airort we got in very late and went to slee saturday I got up and i went next oor to johnnys cabin and we ate and talked we te=hen found cam and liz  and walked to the markets . Later we went back and got ready for the party and walked to the party it was good fun there was kareoki and lots of fun.  On sunday we had a swim and a look around the shops and then we did the naming ceromony qfter that we came home.

edited version

On Friday the 5th of Marc Mum and I went to Brunswick heads for johns fiftieth birthday party and Ivy's Naming ceremony. We flew to the gold coast after a long waqit at the airport. we got in at 7pm and got to our cabin at 8.On saturday morning i got up and walked next door to John's cabin where we all talked and ate. After that we went for a walk with grandma to Cam and Lizs cabin to say hello. We all walked to the markets and walked aroun. Later we went back to our cabin and mum went for a swim while i played with Ivy then we got ready to go to the party. The party was in a greek resteraunt. There was kareioki dancing and lots of fun.
On Sunday we all got up and wenrt for a alk around the shops in Brunswick heads and ate breaky in one of the shops. After that Me, Mum ,Cam and Liz all went for a swim the water was lovely. then we packed our bags and got ready for Ivy's naming ceremony.  It was a great ceremony and i didnt want to leave. We got home at midnight after a long wait at te taxi rank.

my weekend

I have now discovered some of my wonderful family use blogs to.  On Saturday i went to rubys 21st it was a wonderful afternoon tea with family and friends. and to much food for soem. After that we all had a barbeque at oru house. Sunday we all had brunch up in lerua. it was lovely up there

my day today

Well today was another day at cpp in this heat. I was on the computer, did soem gardening i love our garden there and went swimming. I got annoyed at swimming pool today because i got out of the chair there were two people getting in the minute i was in and started swimming they got out, the mums werent letting their kids swim around me but when i got otu they were straight back in.. tomorrwo is a day at the shops.


Edited version

Well todayanother day at CPP in this heat. I was on the computer then i did some gardening in our CPP garden wich i love. After that I went swimming at the Roselands pool. I got annoyed at the pool today because when i got out of my wheelchair the people that were getting into pool got out the minute i was in and swimming.They didnt let there kids come near me and they went to the big pool, when i got out they got straight back in again. Tomorrow is a day at Centro.

About me

Hi i am 24 years old and i have a disability called CHARGE SYNDROME you can read mroe about it in my other blog by clicking on my profile, then the other one me my life. I enjoy reading swimming seeing friends and playing on the computer.  I love to shop for things I DONT NEED LIKE MROE BOOKS. I live at home with mum, dad and my brother and i have many cousins and auntys i love my family and firends.  My grandpa mums dad recently passed in october we all miss him very much but he is watching over me mums mum is still around, dads parents are with grandpa watching over me.

had a thought

ok i have two blogs and i need to really practise editing so roselands says so i thought this coudl be my practise blog where i jsut write anythign and see if it makes sence so here goes, I am now in the Randwick hospital swimming club with kristy and am loving it.  Thats all i can think of for now